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Sites similar to Maroteaux-lamy.Com
Maroteaux-Lamy.com, complete online resource for MPS VI
Description: Welcome to Maroteaux-Lamy.com, your complete online resource promoting awareness and diagnosis of Maroteaux-Lamy syndrome (MPS VI), to advance optimal management of this rare disease and improve the lives of the people who are ...
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3.0 / 5.0, reviewed by Sites Like Search
Language: English
Site topics: conditions
Informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship ...
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3.0 / 5.0, Language: English
Non-profit organization advocating for families affected by mucopolysaccharide and related diseases. Located in Durham, North Carolina, USA.
Site rating:
3.0 / 5.0, Language: English
The Cystinosis Foundation UK is a charity concerned with promoting awareness of Cystinosis and supporting both families and medical research within the United ...
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3.0 / 5.0, Language: English
Founded to provide information and support to affected individuals and their families.
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3.0 / 5.0, Language: English
A star studded fantasy hockey game and auction, allowing participants to play alongside some of hockey's great alumni, while helping to educate both professionals ...
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3.0 / 5.0, Language: English
The PAF is an organization that funds academic and medical research leading to better treatments and a cure of propionic acidemia, an inborn error of metabolism.
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3.0 / 5.0, Language: English
A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families ...
Site rating:
3.0 / 5.0, Language: English
Created by a woman with this condition, information includes description, tips on living with Gilbert's, articles, research and her personal story.
Site rating:
3.0 / 5.0, Language: English